tag:blogger.com,1999:blog-9172354762710486340.post6768466767921765516..comments2023-10-04T03:58:20.878-07:00Comments on Love and Survival with Fragile X: Update: bits and pieces from the weekendSThttp://www.blogger.com/profile/17991027507602019139noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-9172354762710486340.post-24598088464884084752009-07-14T21:11:53.367-07:002009-07-14T21:11:53.367-07:00Yeah, I'm with you on the strangers trying to ...Yeah, I'm with you on the strangers trying to start up conversation. What's really funny is that some of the times they can understand Ian, other times they just make up what they think he said. Makes them look silly when I know what it is he really said! I think Holly's right...most talk without expecting a response. I guess some just like to hear themselves.<br /><br />Can't wait to see the hair cut. We wait as long as we can between cuts as well. My youngest just got called a hippy. Hmph.fragilemomhttps://www.blogger.com/profile/02225506789152025137noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-47149437591106237832009-07-14T07:56:03.353-07:002009-07-14T07:56:03.353-07:00Eh, you are right, Bjetsey. I know sometimes typic...Eh, you are right, Bjetsey. I know sometimes typically developing kids don't answer stranger's questions and still use pacifiers. However, for me it's just one more (of the many) reminders of how Quinn is different. He's not just shy - he can't answer questions verbally - not even when I ask them. And when another (younger) kid sees Quinn in his stroller with his blankie and pacifier and says "baby!" it is a reminder that, in fact, this is kinda true (in some areas, when he was last evaluated, Quinn's developmental age was around 8 months), and that Quinn can't even say the word "baby!" like the (younger) baby can. I'm oversensitive to all these little reminders. I know I'll have to get over it eventually.SThttps://www.blogger.com/profile/17991027507602019139noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-19801383815274086032009-07-13T22:38:26.707-07:002009-07-13T22:38:26.707-07:00I dunno, my neurotypical 2.75 yo doesn't readi...I dunno, my neurotypical 2.75 yo doesn't readily answer questions when asked to by strangers. I think people have high expectations of the average kid to be able to engage quickly with a stranger. Not to minimize your discomfort or point at all, but just to say that I think it's got yet another layer to it. <br /><br />and, N still uses a pacifier. :)Bjetseyhttps://www.blogger.com/profile/03555204152810415312noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-57451307207032328972009-07-13T17:24:59.026-07:002009-07-13T17:24:59.026-07:00I am looking forward to getting to know you and yo...I am looking forward to getting to know you and your story. Thank you for following my blog.Lisa Gioia-Acreshttps://www.blogger.com/profile/15515573279109105145noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-59151340436267775252009-07-13T10:12:52.239-07:002009-07-13T10:12:52.239-07:00I forgot about bubble blowing in therapy. That wa...I forgot about bubble blowing in therapy. That was a fun one :)<br /><br />Haircuts though...yeah...not so much. Matty finally got to a point where he will let my hubby do it but he's not happy about it. He'll get there :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-2663900038791962112009-07-13T07:52:47.264-07:002009-07-13T07:52:47.264-07:00Thanks, Holly's Mom! : ) Quinn's almost th...Thanks, Holly's Mom! : ) Quinn's almost three and looks it, so when folks ask him, "What is your name?", "How old are you?", "Do you want to pet my dog?", "Do you want a balloon?" etc, they do expect him to respond. It's actually pretty wild what most 2.5+ kids can say. We were at a 3-year-old birthday party the other day and the kid talked the entire time, about anything and everything, and knows her colors, numbers, and letters. We've also had the weird experience of having kids smaller than Quinn, upon seeing him in his stroller with his pacifier, point to him and say to their parents, "Look, there's a baby!" At which point the parents say, "That little boy is bigger than you! He's not a baby." Very weird.SThttps://www.blogger.com/profile/17991027507602019139noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-64686508940366012812009-07-13T01:19:48.054-07:002009-07-13T01:19:48.054-07:00Can't wait to see the picture of Quinn's h...Can't wait to see the picture of Quinn's haircut. He was so cute with it all shaggy though :-) I have heard good things about those cards, I'd say though, and not in all cases, but sometimes people talk to kids and don't expect a responce. I ask Holly questions, even though I know she can't talk. But I do know what you mean.Holly's Momhttp://hollyzzdavis.blogspot.comnoreply@blogger.com