tag:blogger.com,1999:blog-9172354762710486340.post7894536718648183786..comments2023-10-04T03:58:20.878-07:00Comments on Love and Survival with Fragile X: Time for a transitionSThttp://www.blogger.com/profile/17991027507602019139noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-9172354762710486340.post-46280088317927784262009-04-01T13:48:00.000-07:002009-04-01T13:48:00.000-07:00Whine away...doing so is sometimes the only thing ...Whine away...doing so is sometimes the only thing that keeps my little brain from exploding in frustration. Schools are not meant to be efficient (or even effective, I've noticed.)<BR/><BR/>We went through the entire hoop jumping process with our school and ulimately their reports read exactly like our EI providers' reports. Maybe because we brought our EI providers to all the assessments and they inserted the right words at the right times, lol.Ummahttps://www.blogger.com/profile/13971352599912799411noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-82421728096958320042009-03-29T08:40:00.000-07:002009-03-29T08:40:00.000-07:00Vicki, that is crazy that they'd send you back to ...Vicki, that is crazy that they'd send you back to Herrick to "update" or redo a 3-week-old eval!!! Very frustrating. In answer to your question about services, that's the biggest issue. ALL of Quinn's providers will change when he is 3 - new school, new PT, OT, ST, new RCEB case worker, etc. And of course we ant to know what services will be offered, what our options are, etc, but we can't even discuss that for a few months, until all the new evals are completed by the school district.SThttps://www.blogger.com/profile/17991027507602019139noreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-23819168842221209182009-03-29T00:21:00.000-07:002009-03-29T00:21:00.000-07:00I am so sorry to hear how frustrating this is. I ...I am so sorry to hear how frustrating this is. I totally get it. We got an independant eval for speech therapy, so we could get the regional center to give us speech therapy at 12 instead of 18 months, and now they say, oh its great the local Herrick Speech therapist says she is at the 6 month level and you need speech, but you need to see our speech therapist for an eval now. <BR/><BR/>The sad thing is, they will probably send us back to Herrick for the eval. WTF?? And this was an eval from 3 weeks ago.... But I can be thankful that if I keep pushing forward and jump through the hoops, eventually I will get what I want/need.<BR/><BR/>Sorry for Quinn to have to continue going through annoying assessments.. No Fun. Will you be able to keep him at his current DayCare/School?Holly's Momhttp://hollyzzdavis.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-9172354762710486340.post-39850208592864088842009-03-28T08:31:00.000-07:002009-03-28T08:31:00.000-07:00I feel for you. The transition from home care to s...I feel for you. The transition from home care to school care is scary. And it is a PITA. And the people doing the assessments probably know as much. And what's worse is that this won't be the last time. Punkin has to be reevaluated every three years. FUN! I wish IEPs didn't naturally fall around birthdays. I just want to celebrate him being one year older, but instead we have to deal with meetings and goals and skill levels and least restrictive environments. Sigh. Sorry to be a bummer! I think I'm cranky this morning...theotherlionhttps://www.blogger.com/profile/04980607353600802565noreply@blogger.com