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Love and Survival with Fragile X

gratitude, grief, joy, work, family, community

Saturday, May 15, 2010

Quinn & Grandpa Bill reading

Posted by Zachary Drake at 5:59 PM

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1 comment:

fragilemom said...: Can't beat moments like these!; May 18, 2010 at 11:27 AM

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Sarah Taylor
Zachary Drake

About Us

We're thirty-something parents of an affectionate, bubble-loving, giggly 4-year-old who happens to have Fragile X Syndrome.

Tags

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Resources and Info

Resources for Kids with Special Needs in the East Bay (online column at Examiner.com by Rachel Trachten)
The National Fragile X Foundation
Fragile X - An informative website by a family with three children with FXS
UC Davis MIND Institute FX Center
Fragile X Research Foundation

Blogs

Internal Monologue-Zac's Politics, Etc blog

Flash lit: Battle Scars - His skin was covered in old scars and bright tattoos, and he reclined languidly on the cushions as I cleaned him up. The history of his skin made no sens...
4 years ago
Who's Brody?

I am so sorry..... - OH MY! Where does the time go? I have not posted since October and we are almost through with March. I can't make up for lost time but I can tell you wh...
6 years ago
Basically FX

I scared. - I recently had the pleasure of visiting Target. Actually 2 Targets for a combined 3 visits in a single day which was a personal record TYVM. Target is on...
7 years ago
3 Little Monkeys

Once upon a time I was attentive to this blog.... - and in the past few years, I've changed things so many times, I've lost all the comments. Well, not all, and they aren't lost - they are in Disqus, and if ...
8 years ago
Holly Daze

Stanford MRI / NIRS Research - We are currently participating in a longitudinal 5 year study on girls with fragile X. Today was the last day of the first research session.. At Stanford ...
8 years ago
Momma Mayhem

- Wow time flies!! I haven't posted in 4 years?? Can that be? What the heck have I been doing???? Oh yeah raised four kids and building a career. But still ...
10 years ago
fragilemom

valentines fun and recipes - Valentines was low key, but sugar filled around here. Thanks to Pintrest and All Recipes for these amazing recipes. Valentine tradition for us is heart sh...
11 years ago
the other lion

teammates - We found them like this. Apparently he buckled her in so that we could all go to Dunkin Donuts. And yes, not only did I take them, but I bought Annabelle ...
11 years ago
Sunny Day

I Want Cookie - Update on the previous post. We're working on him using a sentence to express his needs. "I want...." It's not that he's never put three words together,...
13 years ago
The X Mom

What's Up With The X Mom Gang? - The Gang has undergone some changes and new members have been recruited. We moved almost two years ago and the boys figured I wasn't nearly busy enough so ...
14 years ago
Good Enough Mama

Come The Feck On… - Today. Child. First day back at school. Vomit. I surrender. See the white flag? Done. Moi.
14 years ago
Food Without Quotes-Sarah's Cooking Blog

More fun food from the CSA and a lifestyle change - We're still loving our CSA bag. On Friday night, we made roasted butternut squash, and we couldn't eat it all, so this afternoon I used the leftover roaste...
14 years ago
X-Dad

Catch-up Post - Man, this blogging thing is tricky. When there’s not much going on, it follows that there’s nothing worth blogging about. But when everything is going on, ...
15 years ago
Fragile X-Traordinary

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