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Love and Survival with Fragile X

gratitude, grief, joy, work, family, community

Saturday, May 15, 2010

Quinn & Grandpa Bill reading

Posted by Zachary Drake at 5:59 PM

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1 comment:

fragilemom said...: Can't beat moments like these!; May 18, 2010 at 11:27 AM

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Sarah Taylor
Zachary Drake

About Us

We're thirty-something parents of an affectionate, bubble-loving, giggly 4-year-old who happens to have Fragile X Syndrome.

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Resources and Info

Resources for Kids with Special Needs in the East Bay (online column at Examiner.com by Rachel Trachten)
The National Fragile X Foundation
Fragile X - An informative website by a family with three children with FXS
UC Davis MIND Institute FX Center
Fragile X Research Foundation

Blogs

3 Little Monkeys

I should have been more specific. - When I said I wanted the boys to be more verbal, I should have been more specific. I should have said, I want them to be able to express their thoughts and...
6 hours ago
Holly Daze

Skate Club - The newest member to join Holly's Friday Night Skate Club - Mira! She did so well her first day and having her friend with her she was so much more confi...
17 hours ago
Basically FX

What would you do? - If you were me, if you had this most amazing child…this sweet, funny child…this handsome, clever child…what would you do to keep him whole? What would yo...
5 days ago
Internal Monologue-Zac's Politics, Etc blog

- I will be performing *Dust Storm* at Theatre Esprit Asia in Denver on May 30th and June 1st. | Thank your for reading the *Internal Monologue* feed.
1 week ago
Who's Brody?

Bark in the Park.... - Dear friends and family, Today we leave for our hometown of Lewisburg, TN. It will be a wonderful adventure as we get to see our sweet friends and family t...
1 week ago
Fragile What!?

Happy Belated National Sibling Day - If it wasn’t for Facebook I would be so lost on the goings on of the world. I learned this morning that yesterday was National Sibling Day in America. My r...
1 month ago
fragilemom

valentines fun and recipes - Valentines was low key, but sugar filled around here. Thanks to Pintrest and All Recipes for these amazing recipes. Valentine tradition for us is heart sh...
3 months ago
the other lion

teammates - We found them like this. Apparently he buckled her in so that we could all go to Dunkin Donuts. And yes, not only did I take them, but I bought Annabelle ...
4 months ago
Sunny Day

I Still Have a Blog - I still have a blog. Wow. And I haven't visited it in months, why??? Now I don't even know where to start with updates...so many. I guess just an overa...
1 year ago
Fragile X-Traordinary

can't keep up - I'm a lousy blogger. I'm not even going to try to catch up. I'll just start today. Unfortunately, that's what I always say. But, there's no day like today ...
2 years ago
The X Mom

What's Up With The X Mom Gang? - The Gang has undergone some changes and new members have been recruited. We moved almost two years ago and the boys figured I wasn't nearly busy enough so th...
2 years ago
Chasing The Answer

Guess what? - According to some self-proclaimed 'expert' and woman that claims to be a retired teacher - Amber probably doesn't have autism. Her expert opinion comes fro...
2 years ago
Momma Mayhem

Exotic and rare - Labels...before Jake was "Fragile" now he is considered "extremely rare" like some exotic creature. Jake's neurologist said wednesday that he believes Jake...
3 years ago
Good Enough Mama

Come The Feck On… - Today. Child. First day back at school. Vomit. I surrender. See the white flag? Done. Moi.
3 years ago
Food Without Quotes-Sarah's Cooking Blog

More fun food from the CSA and a lifestyle change - We're still loving our CSA bag. On Friday night, we made roasted butternut squash, and we couldn't eat it all, so this afternoon I used the leftover roaste...
3 years ago
X-Dad

Catch-up Post - Man, this blogging thing is tricky. When there’s not much going on, it follows that there’s nothing worth blogging about. But when everything is going on, ...
3 years ago

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