The last few nights, Quinn's sleep has been awful: multiple wake-ups between midnight and five am, loud screaming and crying. It's been very hard. His clonidine and melatonin regime, which was working quite well for a few months, seems to have become ineffective. We're calling the doctor toady. Perhaps we need to increase the dosages. We've read some pretty discouraging statistics on Fragile X Syndrome and sleep disorders. They go together at a very high rate.
On the brighter side of things, Quinn is talking a lot! He can say "watch" (as in wristwatch), both spontaneously and on demand. He also said "box" several times this morning while grabbing a cardboard box that was on the kitchen table. We also cut his hair last night and it looks much better.
Onward we go.
Gregg Bissonette wishes Quinn Merry Christmas
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11 months ago
5 comments:
Maybe have him checked for an ear infection. My son does this from reflux (and also when he has an ear infection or sometimes just a stuffy nose). He's woken up most nights for the last 2 years but usually goes back to sleep on my shoulder pretty quickly. Lately mylanta before bedtime seems to be helping sleep through. I don't think this is a classic Fragile X sleep issue - usually they are just wide awake in the middle of the night.
We finally broke down and gave my son a low dose of Risperdal, after he just quit sleeping altogether. He is still not a heavy sleeper, but he does get a good night's rest on minimal medication. Good luck!
I am so excited to hear Quinn is talking more. Though I am sorry he is not sleeping well. Good Luck with his dosages.
Great to hear about all the new words! I don't think you'd get a good reaction calling the doctor toady, though.
Developmental leaps (like, say a language burst...) often coincide with sleep issues too. Hopefully it will settle down again, a lack of sleep is just MISERABLE.
FWIW, our bump up to 6mg of melatonin (from 3mg) has worked :-)
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