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Love and Survival with Fragile X

gratitude, grief, joy, work, family, community

Saturday, May 15, 2010

Quinn & Grandpa Bill reading

Posted by Zachary Drake at 5:59 PM

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1 comment:

fragilemom said...: Can't beat moments like these!; May 18, 2010 at 11:27 AM

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Sarah Taylor
Zachary Drake

About Us

We're thirty-something parents of an affectionate, bubble-loving, giggly 4-year-old who happens to have Fragile X Syndrome.

Tags

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Resources and Info

Resources for Kids with Special Needs in the East Bay (online column at Examiner.com by Rachel Trachten)
The National Fragile X Foundation
Fragile X - An informative website by a family with three children with FXS
UC Davis MIND Institute FX Center
Fragile X Research Foundation

Blogs

Internal Monologue-Zac's Politics, Etc blog

Where is 56th and Wabasha? "Meet Me in the Morning" Dylan Mystery Solved - Short version The lyric is not "Fifty-sixth and Wabasha", it is actually "Fifty-six and Wabasha", referring to the intersection of old Minnesota Highway...
1 month ago
Holly Daze

Turmoil, Frustration, Suggested Solutions.. A journey back to School… - Greetings, School Board members and Superintendent Stephens I am writing this message with a lot of mixed feelings, personal struggles, antidotes, frustr...
9 months ago
Who's Brody?

- Dear friends, This is my last post. It is a couple of my favorite pictures of Brody. It was fun to do a blog about the children growing up. Our Brody is ...
2 years ago
Basically FX

I scared. - I recently had the pleasure of visiting Target. Actually 2 Targets for a combined 3 visits in a single day which was a personal record TYVM. Target is on...
3 years ago
3 Little Monkeys

Zack -
4 years ago
Momma Mayhem

- Wow time flies!! I haven't posted in 4 years?? Can that be? What the heck have I been doing???? Oh yeah raised four kids and building a career. But still ...
7 years ago
fragilemom

valentines fun and recipes - Valentines was low key, but sugar filled around here. Thanks to Pintrest and All Recipes for these amazing recipes. Valentine tradition for us is heart sh...
8 years ago
the other lion

teammates - We found them like this. Apparently he buckled her in so that we could all go to Dunkin Donuts. And yes, not only did I take them, but I bought Annabelle ...
8 years ago
Sunny Day

I Want Cookie - Update on the previous post. We're working on him using a sentence to express his needs. "I want...." It's not that he's never put three words together,...
9 years ago
The X Mom

What's Up With The X Mom Gang? - The Gang has undergone some changes and new members have been recruited. We moved almost two years ago and the boys figured I wasn't nearly busy enough so ...
10 years ago
Food Without Quotes-Sarah's Cooking Blog

More fun food from the CSA and a lifestyle change - We're still loving our CSA bag. On Friday night, we made roasted butternut squash, and we couldn't eat it all, so this afternoon I used the leftover roaste...
11 years ago
X-Dad

Catch-up Post - Man, this blogging thing is tricky. When there’s not much going on, it follows that there’s nothing worth blogging about. But when everything is going on, ...
11 years ago
Fragile X-Traordinary

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Chasing The Answer

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Fragile What!?

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Good Enough Mama

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