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Love and Survival with Fragile X

gratitude, grief, joy, work, family, community

Saturday, June 20, 2009

Another fairyland pic

Posted by Zachary Drake at 11:23 AM
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Contributors

Sarah Taylor
Zachary Drake

About Us

We're thirty-something parents of an affectionate, bubble-loving, giggly 4-year-old who happens to have Fragile X Syndrome.

Tags

  • milestones
  • community
  • joy
  • gratuitous cuteness
  • sleep
  • philosophy
  • at the doctor's office again
  • grief
  • early intervention
  • gratitude
  • love
  • stress
  • family
  • work
  • normal parenting
  • activism
  • depression
  • school
  • discipline
  • snot
  • diagnosis
  • etiquette
  • just for fun
  • transition
  • polite nudging

Resources and Info

  • Resources for Kids with Special Needs in the East Bay (online column at Examiner.com by Rachel Trachten)
  • The National Fragile X Foundation
  • Fragile X - An informative website by a family with three children with FXS
  • UC Davis MIND Institute FX Center
  • Fragile X Research Foundation

Blogs

  • Internal Monologue-Zac's Politics, Etc blog
    Kiss of Death - Okay folks, you’ve heard about #Whamageddon and #littledrummerboychallenge. Now, there’s a brand new Christmas song avoidance game: “Kiss of Death”! The ...
    2 weeks ago
  • Who's Brody?
    I am so sorry..... - OH MY! Where does the time go? I have not posted since October and we are almost through with March. I can't make up for lost time but I can tell you wh...
    7 years ago
  • Basically FX
    I scared. - I recently had the pleasure of visiting Target. Actually 2 Targets for a combined 3 visits in a single day which was a personal record TYVM. Target is on...
    8 years ago
  • 3 Little Monkeys
    Once upon a time I was attentive to this blog.... - and in the past few years, I've changed things so many times, I've lost all the comments. Well, not all, and they aren't lost - they are in Disqus, and if ...
    9 years ago
  • Holly Daze
    Stanford MRI / NIRS Research - We are currently participating in a longitudinal 5 year study on girls with fragile X. Today was the last day of the first research session.. At Stanford ...
    9 years ago
  • Momma Mayhem
    - Wow time flies!! I haven't posted in 4 years?? Can that be? What the heck have I been doing???? Oh yeah raised four kids and building a career. But still ...
    11 years ago
  • fragilemom
    valentines fun and recipes - Valentines was low key, but sugar filled around here. Thanks to Pintrest and All Recipes for these amazing recipes. Valentine tradition for us is heart sh...
    12 years ago
  • the other lion
    teammates - We found them like this. Apparently he buckled her in so that we could all go to Dunkin Donuts. And yes, not only did I take them, but I bought Annabelle ...
    12 years ago
  • Sunny Day
    I Want Cookie - Update on the previous post. We're working on him using a sentence to express his needs. "I want...." It's not that he's never put three words together,...
    14 years ago
  • The X Mom
    What's Up With The X Mom Gang? - The Gang has undergone some changes and new members have been recruited. We moved almost two years ago and the boys figured I wasn't nearly busy enough so ...
    15 years ago
  • Good Enough Mama
    Come The Feck On… - Today. Child. First day back at school. Vomit. I surrender. See the white flag? Done. Moi.
    15 years ago
  • Food Without Quotes-Sarah's Cooking Blog
    More fun food from the CSA and a lifestyle change - We're still loving our CSA bag. On Friday night, we made roasted butternut squash, and we couldn't eat it all, so this afternoon I used the leftover roaste...
    15 years ago
  • X-Dad
    Catch-up Post - Man, this blogging thing is tricky. When there’s not much going on, it follows that there’s nothing worth blogging about. But when everything is going on, ...
    16 years ago
  • Fragile X-Traordinary
    -
  • Fragile What!?
    -
  • Chasing The Answer
    -
Fragile X Webring
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      • Up and Down Day
      • Back on track
      • A rose for my yummy
      • Enchanted walks
      • What the hell happened?
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      • Happy Father's Day!
      • Another fairyland pic
      • Quinn at Children's Fairyland in Oakland
      • Life on Sertraline (generic Zoloft)
      • All of the budget cuts were passed today
      • It's not too late to take action to stop more cuts...
      • Action Alert: Draconian CA State Budget Cuts
      • Shopping may never be the same again
      • Our First IEP
      • Random observations from 4th day on Sertraline
      • Quinn looking frizzy-haired in the park
      • Uhhh......I'm on drugs but now its different
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      • A Theory on how Sertraline works
      • I'm on drugs!
      • Blanket o' Lead
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